Fibromyalgia

[skcin]

Originally Posted by estranged4life

right temporal lobe is expanding, thus causing me more pain than before (I have had a migraine type headache for 3 hours now, not even hydrocodone is helping to ease the pain). It is now affecting my vision, sometimes I have blurred double vision and very bad mood swings (The tumor is located in an area that can affect my mental health - which explains why my temper has started to come back) along with other annoying side-affects (Numbness)

Been referred to have another MRI performed to see how much more damage my brain has suffered

Hope you're feeling better soon - cheers!

[highwaywomen]

Originally Posted by HejiraNYC

Have you tried one of the two treatments currently approved by the FDA for fibromyalgia- Lyrica (neuropathic pain med) and Cymbalta (antidepressant)? Since fibromyalgia is a diagnosis of exclusion, i.e., nobody knows what the hell is wrong with you, I would imagine you must have tried just about everything imagineable...

Wishing you and Brian the best!

Brian hope everything is ok. I'll be thinking about you.

I have tried Lyrica. I was the first FMS patient that my doctor tried it on. I suffer from insomnia and have a lot of trouble sleeping. Lyrica made me sleep 12 hours every night and it would carry on with me throughout the day. I was actually sleeping on my lunch breaks at work, in a chair. I have a hard enough time falling asleep in my own bed, let alone anywhere else. My muscle spasms increased ten fold. I went a few weeks before seeing my chiropractor and he noticed immediately that I was shaking all over. He told me to stop it that day. I looked on their website later and found that is one of the side effects that you have to 'stop right away and call your doctor.' I think I lasted about 4-6 weeks on it. My doctor later told me she put another FMS patient on it and the same thing happened to them. Funny how the FDA is finally approving a drug for FMS, but it causes those side effects. Granted I only know of two people with FMS that have tried it (myself included), but still. Cymbalta sounds so familiar, I am sure I tried it before. I have been on SO many different meds the last 8 years, it's bad that I can't remember them. I do know that when I was on Paxil it was so bad I ended up in ER. I know what Stevie is talking about when she mentions the Klonopin in interviews. I know it helps some people, you just have to be so careful. I am very sensitive to medications. Paxil really did me in and I will NEVER go near it again. But that's just me, I am sure it has helped others.

Thank you to everyone for all the well wishes. I have been cursed with a sinus infection this week and I just got back from classes. It's been a very long day and I think I'm going go lay down and watch some of the horror films I've been TiVo-ing the last few days (I love this time of year!). I think my immune system was down during my flare up, because I very rarely get sick anymore. The FMS is enough! Hope everyone is doing well! Thanks again.

Jackie